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Celine Dion Shares Scary Footage of Her Suffering Spasm in Tearful Documentary Scene | E! News

In Celine Dion's new documentary, 'I Am: Celine Dion,' the legendary singer shares a glimpse inside her difficult battle with stiff-person syndrome. The Grammy winner shows her daily struggles while battling stiff-person syndrome in the documentary, out now on Prime Video.

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Celine Dion Shares Scary Footage of Her Suffering Spasm in Tearful Documentary Scene | E! News

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74 Comments

    • So many of us are suffering to the max day in & day out. We don’t get a break or vacation from it. We are home bound/bed ridden often times going without our basic needs being met.😭🙏 I feel so deeply for Celine and I cry tears for her, tears for me, all of us suffering that no one understands. I’m watching her interviews and wooooow. Her words have given me language to what I suffer with and how I feel but haven’t been able to express. Sending love to all of us suffering for too many years and at the end of our rope.🙏🙏🙏🙏May we hold on another day & never give up.🙏🙏🙏🙏

    • I have to wonder if a few years ago when she lost all that weight, if that did not trigger something in her immune system? She lost so much weight that she was skeletal.

    • ​@user-ks3sq6hj6j That is truly powerful. So great to read this comment that Celine Dion’s interview gives you strength & words for what you feel. Soooo POWERFUL! So happy for you too that that helps you. It’s probably why she did go ahead and let them film this. Hang in there. ❤

  1. I worked in a premiere hospital where top celebrities go. Not all celebrities have enough humility and courage to do this. Sharing this side of her is one brave decision, as it brings awareness to the condition. It also allows people to realize that they are also human beings. I wish all the best to Celine Dion.

    • Excellent post and so very true. No matter their wealth and status, everyone has their own problems. I wish her the best in life as I do with all the good people in life.

    • @@elizabethpieters7798Of course, no one is obliged to, but the fact that she is brave and open enough to share this, just show how she recognizes her own humanity, that she’s just like any other person going through struggles. Believe it or not, I’ve met patients, nomatter who they were, who still held on to their pride until the end, like nothing’s wrong with them. A lot of these patients could’ve helped others in the same situation but didn’t.

    • This poor woman needs deliverance. I by no means say this in a harsh way.. I pray someone will come into her life and offer real truth. She’s made a clothing line for children that doesn’t sit well with many people right before this condition overtook her.

    • Allah سبحانه وتعالى said,

      (Interpretation of the meaning)

      And We seized them with extreme poverty and loss in health so that they might humble themselves (believe with humility). [Al-An’aam 6:42]

      And when harm touches man, he invokes Us, lying on his side, or sitting or standing. But when We have removed his harm from him, he passes on as if he had never invoked Us for a harm that touched him! Thus it is made fair-seeming unto the Musrifun (extravagants) that which they used to do. [Yunus 10:12]

      But when He gives them a taste of His Mercy, behold, a party of them associates partners in worship with their Lord.

      So as to be ungrateful for the graces which We have bestowed on them. Then enjoy (your short life); but you will come to know. [Ar-Rum 30:33-34]

      And truly, if We give him a taste of mercy from Us, after some adversity (severe poverty or disease, etc.) has touched him, he is sure to say: “This is due to my (merit); I think not that the Hour (Day of Judgement) will be established. But if I am brought back to my Lord, surely, there will be for me the best (wealth) with Him.” Then, We verily, will show to the disbelievers what they have done, and We shall make them taste a severe torment. [Fussilat 41:50]

    • Allah سبحانه وتعالى said,

      (Interpretation of the meaning)

      And We seized them with extreme poverty and loss in health so that they might humble themselves (believe with humility). [Al-An’aam 6:42]

      And when harm touches man, he invokes Us, lying on his side, or sitting or standing. But when We have removed his harm from him, he passes on as if he had never invoked Us for a harm that touched him! Thus it is made fair-seeming unto the Musrifun (extravagants) that which they used to do. [Yunus 10:12]

      But when He gives them a taste of His Mercy, behold, a party of them associates partners in worship with their Lord.

      So as to be ungrateful for the graces which We have bestowed on them… [Ar-Rum 30:33-34]

      And indeed, if We give him a taste of mercy from Us, after some adversity (severe poverty or disease, etc.) has touched him, he is sure to say: “This is due to my (merit); I think not that the Hour (Day of Judgement) will be established. But if I am brought back to my Lord, surely, there will be for me the best (wealth) with Him….” [Fussilat 41:50]

    • SHE NEEDS JESUS LIKE YESTERDAY I’VE SEEN HER MUSIC VIDEOS AND SHE GIVES PRAISE TO THE DEVIL… SO TALENTED, BUT SO, SO WARPED IN HER THINKING AND ALLEGIANCE AND THE MESSAGES IN HER MUSIC. WOW, I HOPE SHE CHANGES, SHE NEEDS TO TURN BACK TO JESUS.

    • Allah سبحانه وتعالى said,

      (Interpretation of the meaning)

      And when harm touches man, he invokes Us, lying on his side, or sitting or standing. But when We have removed his harm from him, he passes on as if he had never invoked Us for a harm that touched him! Thus it is made fair-seeming unto the Musrifun (extravagants) that which they used to do. [Yunus 10:12]

      But when He gives them a taste of His Mercy, behold, a party of them associates partners in worship with their Lord. [Ar-Rum 30:33]

      And We seized them with extreme poverty and loss in health so that they might humble themselves (believe with humility). [Al-An’aam 6:42]

      And truly, if We give him a taste of mercy from Us, after some adversity (severe poverty or disease, etc.) has touched him, he is sure to say: “This is due to my (merit); I think not that the Hour (Day of Judgement) will be established. But if I am brought back to my Lord, surely, there will be for me the best (wealth) with Him.” Then, We verily, will show to the disbelievers what they have done, and We shall make them taste a severe torment. [Fussilat 41:50]

  2. Celine Dion and Michael J Fox are two of my favorite celebrities who are going through health issues. They are also close to my age – 59 and I pray for them. 🙏🏼

  3. So brave of her to document this part of her journey on her most vulnerable state. I hope she recovers. She made so many people happy yet she suffers the most, it’s heartbreaking and all I can do is pray for her.

  4. I recently saw a neurology team who thought I was dealing with the early stages of this same illness. My life over the last 4-5 years has been plagued by terrifying neurological symptoms. Painful body spasms, throat muscle spasms causing it to close and deplete my oxygen to dangerous levels in my sleep,m, muscle jerking, tetany. All to a much milder degree than Mrs.Dion but still so terrifying! She is so strong for continuing to work despite her condition!

    Luckily out I had parathyroidism causing severe mineral deficiencies that caused me these issues. I’m on the road to recovery and it breaks my heart that she is still suffering with such a painful and terrifying illness. I truly hope that this large scale exposure of SPS allows for a cure or better symptom management to be developed in the near future❤️

    She is a an absolute fighter 💪🏻

    • Do you have parathyroid deficiency or excess production? Sorry for asking, its just to understand whether this might be a similar diagnosis I’m experiencing

    • The Holy Quran was revealed to prophet Muhammad Sallallahu alaihi waa sallam (PBUH) through angel Jibreel Alai his salam 1400 years ago as guidance for all Mankind. All the words of the holy Quran are from the Creator.Know your Creator who has spoken to you through the holy Quran.

      Search on YouTube, The meaning of life muslim spoken word. Try to watch the video.
      There are a total of 01 to 114 surahs in the holy Quran. I request everyone to buy the holy Quran with translation and read the entire holy Quran patiently to know about the creator and to know why he created us.

      Search on YouTube, Quran 02 surah Baqara arabic and English translation or native language translation. Listen to this surah patiently you will get the answer to all of your questions.

      May Allah guide all of you to the right path. Amen…..

    • Absolutely. No disrespect or shade to Celine at all – I think she’s incredible for releasing this. Thanks to her we are now wondering how on earth do people with the wealth to afford the care she has, cope with this awful disease? No doubt this was her intention in allowing this footage to be taken. Much Love to you Dion. You are a true Warrior Xx

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